https://www.thekaiyafoundation.org/our-mission daily 0.75 2021-12-01 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/f9b94dd0-f02d-4d33-a26a-2ae37bf6eecd/pexels-amina-filkins-5560544.jpg Our Mission - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1637071325181-DYZXSV00BFXCZQR18MYB/nathan-dumlao-mNLymMqX7iE-unsplash.jpg Our Mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1637072861877-XHC17HMJPVK958CJG19R/baby-natur-7CA5GfekZ_0-unsplash.jpg Our Mission https://www.thekaiyafoundation.org/kaiyas-story daily 0.75 2021-12-14 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/c204caa0-4df0-4522-a73c-bde8b18304cd/kaiya-foundation-based-in-london-syndey-new-york Kaiya's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/450ae51b-935e-4cb2-8eee-53d1b0086a2f/non-profit-support-childhood-cancer Kaiya's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/0774af4a-7eea-41e8-bef6-62419ceb7ab9/IMG_4610.jpg Kaiya's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/7607ec8c-0e01-4f17-b59d-be5703b3030c/non-profiting-guiding-those-with-blood-cancer Kaiya's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1637074361569-EI6O06I4W5V4CF746RIM/IMG_3089.jpg Kaiya's Story https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1637077515682-ELZWFMTAYZP8CK5AWLMH/IMG_2879.jpg Kaiya's Story https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639498777922-RV6KMXLYV2EL2A4C99CY/unsplash-image-FtZL0r4DZYk.jpg Kaiya's Story https://www.thekaiyafoundation.org/home daily 1.0 2025-03-26 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/7d1be03c-38d5-41cd-b368-a2b6e010c01a/non-profit-organization-in-Paris-Atlanta-Copenhagen-for-children-with-Leukaemia Our mission - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639737182904-653476EATGZOIQY661F7/1._Tavola+disegno+1.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639737182916-MCNQ7YCAEQXOPXNPDNGF/2_Tavola+disegno+1.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639737183505-8EB8I8YV0OLNRBVHQUIZ/3_Tavola+disegno+1.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639737183613-KUCG8LVIEBNRXER0WY0X/4_Tavola+disegno+1.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639737184107-QV24RESGC0SNS3CXNQ2L/5_Tavola+disegno+1.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/437eca7e-0db6-4991-8bcf-f56d6f365ab5/Screenshot+2021-12-17+at+15.28.22.png Our mission - Pre-clinical science Supporting relevant pre-clinical innovation for Very-High-Risk leukemia: We are currently developing long-term, international collaborations involving European and US academic and clinical centres of excellence https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/437eca7e-0db6-4991-8bcf-f56d6f365ab5/Screenshot+2021-12-17+at+15.28.22.png Our mission - Clinical medicine Funding clinical efforts to provide personalised, less toxic solutions: We are part of innovative approaches to develop precision medicine solutions for patients. In particular, we are supporting a personalized oncology medicine platform for VHR-L patients to screen susceptibility to treatment (called Drug Response Profiling, DRP). The DRP allows informed decisions for experimental treatments by testing 200+ candidate drugs on patient cancer cells. Since its development, the DRP has grown significantly over the last years, now reaching over 100 patients a year. We aim to scale the current platform across major pediatric centers, embedding the DRP as standard-of-care. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/437eca7e-0db6-4991-8bcf-f56d6f365ab5/Screenshot+2021-12-17+at+15.28.22.png Our mission - Patient advocacy Giving affected patients and parents a voice throughout their journey: We give patients, parents and families a voice and a platform to connect We provide to our community (not exhaustive): - A forum / messaging platform where you can connect with affected patients and families, and access clinical experts who can help you identify and reach out to the relevant specialists - A library of clinical and scientific literature of VHR-L (by genetic subtype) - A summary of other charities that can help (e.g., ……) - (To be confirmed) A dietician service to help patients and caretakers on all food-related questions for VHR-L patients We are always looking for additional ways to support the community, please reach out with any helpful ideas you may have. Join us to here https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/0c1554ef-8ce8-4838-93bb-41228bb5201e/Screenshot+2021-12-17+at+16.11.30.png Our mission - My Brave Journey Written by Kaiya, she wanted to create a book to help other child with their mental health whilst going on this difficult journey. This non-profit book has a section to deal with big emotions, discussing their illness at school, dealing with hospital trips, mindfulness, interviewing their favourite people to show why they are so loved, fun activities and a daily journal to highlight the positives of the day. https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639497333929-HHF2H79SN91D040CGPA8/istockphoto-853823792-612x612.jpeg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639499115189-DB46RFC1E39B3JMJ4EHV/iStock-1163446624.jpg Our mission https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1705398503025-BEAMITI8Q6YKGB0OK46J/youtube-cover.jpg Our mission https://www.thekaiyafoundation.org/contact daily 0.75 2021-12-01 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639501743899-IG4P6KBN9SWFU4HFG2N5/unsplash-image-zc5_p_31U5g.jpg Contact https://www.thekaiyafoundation.org/leadership-index daily 0.75 2024-10-14 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639486906680-15U303FLUDUI4V8M3KSF/1._Tavola+disegno+1.jpg Leadership index https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639486906682-5L4EXRDRJOS7YNH7U9HQ/2_Tavola+disegno+1.jpg Leadership index https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639486907228-1XSBQ4908BR6LOT92THH/3_Tavola+disegno+1.jpg Leadership index https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639486907214-DZM2UB6QYSMGFDVVVLZM/4_Tavola+disegno+1.jpg Leadership index https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639486907676-O5FBPVURQUMIF5PWNJN9/5_Tavola+disegno+1.jpg Leadership index https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1638985169085-4G1B1RYUEEHF2YJM17D0/bourquin_kinderspital+zurich.jpeg Leadership index https://www.thekaiyafoundation.org/board-of-trustees daily 0.75 2021-12-14 https://www.thekaiyafoundation.org/board-of-trustees/ruchit-patel monthly 0.5 2022-05-12 https://www.thekaiyafoundation.org/board-of-trustees/brice-mouttet monthly 0.5 2023-11-29 https://www.thekaiyafoundation.org/scientific-board-of-advisory daily 0.75 2023-11-29 https://www.thekaiyafoundation.org/scientific-board-of-advisory/professor-patrick-a-brown-md monthly 0.5 2023-11-29 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/c9dbf961-30ea-4dc2-add7-81c0d0830335/Large-3462.jpg Scientific Board of Advisory - Prof. Donald Small, MD, PhD Dr. Donald Small is Director of the Division of Pediatric Oncology at the Johns Hopkins Kimmel Cancer Center and the Kyle Haydock Professor of Oncology. He holds joint appointments in Pediatrics and Cellular and Molecular Medicine and Human Genetics. He also directs the Johns Hopkins/National Cancer Institute Pediatric Hematology/Oncology Fellowship program. Dr. Small received his undergraduate, and then M.D. and Ph.D. degrees from the Johns Hopkins University in 1979 and 1985. His Ph.D. research was conducted with Bert Vogelstein in the Oncology Department and his postdoctoral research with Tom Kelly in the Molecular Biology and Genetics Department. He trained in pediatrics and pediatric hematology/oncology at Johns Hopkins and joined the faculty in 1990. https://www.thekaiyafoundation.org/scientific-board-of-advisory/professor-kimberly-stegmaier-md monthly 0.5 2022-02-04 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/636a6b42-8322-4136-a783-6c4735caaba9/Stegmaier.jpeg Scientific Board of Advisory - Prof. Kimberly Stegmaier, MD Professor Stegmaier is a Professor of Pediatrics at Harvard Medical School, the Vice Chair of Pediatric Oncology Research at the Dana-Farber Cancer Institute (DFCI), and an Attending Physician at the Boston Children’s Hospital (BCH) and DFCI. She is the Co-director of the Pediatric Hematologic Malignancies Program at DFCI and BCH and is also an Institute Member of the Broad Institute of Harvard and MIT. Professor Stegmaier has dedicated her laboratory-based research to the exploration of disease mechanisms and identification of new therapeutic targets for childhood cancers using innovative systems biology approaches. She won numerous awards, such as the Stand Up to Cancer and St. Baldrick’s Foundation Innovative Research Grants and a National Cancer Institute Outstanding Investigator Award. She co-founded the LEAP Consortium, which led one of the first clinical genomics studies focused on children with relapsed/refractory leukemias in North America. She plays a leading role in other key clinical consortia in North America focused on the development of precision medicine for childhood leukemia, including the PedAL Consortium, which is dedicated to innovative clinical trials for children with high-risk leukemia and works closely with the European counterparts the Innovative Treatments for Childhood Cancer and the International BFM Study Group. The Stegmaier laboratory integrates chemical biology and functional genomic approaches to discover new lead compounds and protein targets for cancer therapy. She has focused her efforts on childhood cancers, particularly high-risk leukemias. Several of her discoveries have led to new clinical trials for children with cancer. One of her fundamental interests is to understand how aberrant transcription factors reprogram cancer cells and how to target these mechanisms specifically, which is of central importance for very high-risk leukemias. https://www.thekaiyafoundation.org/scientific-board-of-advisory/professor-ajay-vora-md monthly 0.5 2022-02-14 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/22b8b0e7-619f-4f5c-92d3-8756338cb88a/ajay.jpeg Scientific Board of Advisory - Prof. Ajay Vora, MD Professor Ajay Vora leads the Hematology-Oncology Program at Great Ormond Street Hospital in London. He is one of the world leaders in clinical research for the treatment of acute lymphoblastic leukemia. He was chair of the UK NCRI childhood leukemia sub-group and European I-BFM ALL committee, a group that oversees the development of leukemia therapy globally. He has played a seminal role in scaling research consortia globally and successfully promoted innovation in these trials. He is Chief Investigator of several national and international phase 3 clinical trials and Principal Investigator of over 20 trials and an internationally respected opinion leader in this field. Ajay Vora’s expertise covers the critical decades of the development of leukemia therapy. At GOSH, he built one of the strongest clinical programs in Europe with a dedicated focus on innovation to improve outcome for children with resistant disease and overall to decrease toxicity with personalized approach. Besides a productive program in Immunotherapy, Professor Vora has promoted the development of functional precision approaches, building a functional screening effort in cooperation with experts that are dedicated to improving the treatment of VHR-ALL. His expertise with high-risk therapy including haemopoietic stem cell transplantation (HSCT) will be invaluable to test new concepts for clinical translation. https://www.thekaiyafoundation.org/scientific-board-of-advisory/professor-jean-pierre-bourquin monthly 0.5 2021-12-14 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/80257e60-7c03-4895-a6bf-6d10fa54d609/jean-pierre-bourquin.jpeg Scientific Board of Advisory - Prof. Jean-Pierre Bourquin, MD, PhD Trained as physician-scientist with a PhD in molecular biology in Zurich, he joined the prestigious fellowship program of the Division of Pediatric Hematology and Oncology at Dana‐Farber Cancer Institute and Children’s Hospital, Harvard Medical School where he developed his focus on very high-risk acute leukemia. He is full professor at the faculty of medicine of the University of Zurich and physician in chief of the Department of Hematology, Oncology, Stem Cell Transplantation and Immunology at the University Children's Hospital Zurich. He built an internationally leading clinical and research program for hematologic malignancies. His research focus is on mechanisms of drug resistance in childhood acute lymphoblastic leukemia, in particular new approaches to target transcriptional dependencies and development of functional phenotypic screening assays for precision hematology / oncology. These have paved the way for individualized molecular therapies for this group of vulnerable patients. https://www.thekaiyafoundation.org/scientific-board-of-advisory/professor-arend-von-stackelberg monthly 0.5 2021-12-14 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/b4fcb13e-ce40-4b1f-be83-bc14e58e973c/stackelberg.jpeg Scientific Board of Advisory - Prof. Arend von Stackelberg, MD As the Chair of the world’s largest study on relapsing childhood leukemia (IntReALL), Professor von Stackelberg is the recognized leader for the treatment of relapsed and refractory in Europe. He also is faculty member at the Charité Berlin. The aim of IntReALL is to develop an optimized and internationally valid standard therapy for children with relapsed ALL. Arend von Stackelberg promotes the integration of innovative treatment for the IntReALL Study Group. IntReALL cooperates with ITCC to develop personalized treatment strategies for patients with VHR-ALL. Professor Stackelberg oversees the treatment of the most challenging patients and direct expertise with new agents and immunotherapy for acute leukemia. He is a former Chair of the IBFM Resistant Disease Committee and member of the ITCC hematology Committee. This includes testing new substances in their efficacy against VHR leukemia. As such the team lead by Arend von Stackelberg is a key partner to all ongoing efforts in VHR leukemia across Europe. https://www.thekaiyafoundation.org/patient-advocacy daily 0.75 2022-02-21 https://www.thekaiyafoundation.org/preclinical-science daily 0.75 2022-02-21 https://www.thekaiyafoundation.org/clinical-medicine daily 0.75 2022-02-28 https://www.thekaiyafoundation.org/flagship-projects-index daily 0.75 2022-02-21 https://www.thekaiyafoundation.org/coming-soon-page daily 0.75 2021-10-22 https://www.thekaiyafoundation.org/positioning daily 0.75 2021-12-14 https://www.thekaiyafoundation.org/donate daily 0.75 2021-12-01 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/e69e4a94-2ff3-45bb-bc7c-9741375ee60c/tk-hammonds-qJDkJRTedNw-unsplash.jpg donate - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.thekaiyafoundation.org/opening-leadership daily 0.75 2021-12-01 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/1639500488717-Z0STHFVXF6PZEPBKRRTP/unsplash-image-mbL91Lg56zc.jpg opening leadership https://www.thekaiyafoundation.org/donate-1 daily 0.75 2021-12-01 https://www.thekaiyafoundation.org/new-page daily 0.75 2021-12-14 https://www.thekaiyafoundation.org/website-privacy-notice daily 0.75 2022-01-07 https://www.thekaiyafoundation.org/terms-conditions daily 0.75 2022-01-07 https://www.thekaiyafoundation.org/grant daily 0.75 2025-03-29 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/093a4328-d222-41d3-8bb1-162b936da9bc/2.jpg Grant Proposal https://www.thekaiyafoundation.org/store daily 0.75 2025-03-26 https://www.thekaiyafoundation.org/store/mybravejourneyjournal monthly 0.5 2025-03-26 https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/abff58c1-6c95-4adf-9420-be37bc0c72d8/advert_book.jpg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/58f2ccef-0884-4d45-8478-1f3fd9a526af/87FBED2D-1993-462B-BEFA-39378B8BC2EA.jpeg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/03b3be6f-8eca-407d-9c00-0fca93ab060f/IMG_9025.jpeg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/5a7b4b5e-1eab-4096-8080-f363d9206a39/8DFC7349-EA26-4937-BC21-50B09C874A5C.jpeg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/d99b4d11-9735-4135-accc-508195c6b4a1/B705DFFB-E38F-4928-A240-B6CB9E8D6AF7.jpeg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/76044b11-51ee-48ec-be8e-b7771f2fe2e5/225BD71B-ECE0-4B1D-9270-FA7C6734D104.jpeg Store - My Brave Journey Journal https://images.squarespace-cdn.com/content/v1/616027bfc7f35034ef9a662b/5dc06089-901c-41ac-8ec5-c8ea9e4e2cff/9BCA77E2-330C-4BC9-BCCC-3A716EAD405F.jpeg Store - My Brave Journey Journal